Opt out of sharing your health records (2024)

Important

Opt outs do not apply to the federated data platform.

Find out more about the federated data platform from NHS England

Why your data is important

The NHS uses information about patients (patient data) to research, plan and improve:

  • the services we offer
  • the treatment and care patients receive

We get this data from your GP surgery, hospitals and other healthcare providers. The organisation that collects your data is called NHS Digital.

To help improve services, NHS Digital shares this data with researchers from organisations such as universities or hospitals. This type of data-sharing has been happening for many years.

All data that is collected and shared is protected by strict rules around privacy, confidentiality and security.

Information:

We never sell patient data or share it with insurance or marketing companies.

Find out more about how NHS Digital is looking after your data.

Opting out of sharing your data

You can choose whether or not your data is used for research and planning. There are different types of data-sharing you can opt out of.

1. Stop your GP surgery from sharing your data

This is called a Type 1 Opt-out.

  • To do this you need to fill in an opt-out form and return it to your GP surgery. Download a Type 1 Opt-out form.
  • Only your GP surgery can process your opt-out form. They will be able to tell you if, and when, you have been opted out.

If you choose a Type 1 Opt-out, your GP will not share your data for research and planning. However, NHS Digital will still be able to collect and share data from other healthcare providers, such as hospitals.

Find out more about Type 1 Opt-out from NHS Digital's transparency notice

2. Stop NHS Digital and other health and care organisations from sharing your data for research and planning

This is called the National Data Opt-out.

  • To opt out online or find out more, visit Make your choice.
  • If you choose this opt-out, NHS Digital and other health and care organisations will not be able to share any of your personal data with other organisations for research and planning, except in certain situations. For example, when required by law.
  • If you want to check if you have opted out, you can enter your details again at Make your choice or check your settings in the NHS App.

You can opt out, or opt back in again, at any time.

Data used for your care

If you choose to opt out of sharing your data, your personal health information will still be used to make sure you get the treatment and care you need. For example, your data may be shared so that you can be referred to hospital or get a prescription.

Page last reviewed: 20 August 2021
Next review due: 20 August 2024

Opt out of sharing your health records (2024)

FAQs

How to stop medical records from being shared? ›

If you do not want your information to be exchanged electronically, select that option on the consent form. Or, you can discuss your concerns with your provider directly. Even if your information is not exchanged electronically, your provider is not required to stop maintaining your records in digital format.

Should I decline HIPAA authorization? ›

Should you sign a HIPAA authorization form? In most cases, the answer is yes. HIPAA is designed to protect patients' sensitive health information. Following all HIPAA rules can help to protect healthcare professionals from legal trouble and allow them to better serve their patients.

How do I opt out of Health Information Exchange? ›

If you don't want to share your PHI, you must complete the HIE Member Opt Out/Opt In Form for PHI. Then sign and send the form to us by either mail, fax, or walk-in. If you do not opt out of sharing your PHI, you agree to allow PHC to share your information.

Is sharing health information a HIPAA violation? ›

The HIPAA Privacy Rule at 45 CFR 164.510(b) permits covered entities to share with an individual's family member, other relative, close personal friend, or any other person identified by the individual, the information directly relevant to the involvement of that person in the patient's care or payment for health care.

How do I restrict access to my medical records? ›

You can also ask your doctor or health plan to limit how they use or release your information for treatment, payment, or healthcare operations. But they are not required to agree to your request. You also have the right to ask your doctor or health plan to contact you only in certain ways or at certain locations.

Can someone access your medical records? ›

Your health information cannot be used or shared without your written permission unless this law allows it. For example, without your authorization, your provider generally cannot: Give your information to your employer. Use or share your information for marketing or advertising purposes or sell your information.

How do I opt out of HIPAA? ›

Opt-out mechanisms play a role in maintaining HIPAA compliance by allowing patients to control the use of their protected health information (PHI) for marketing purposes. They ensure that patients can grant or deny authorization for such communications, respecting their preferences and consent, as mandated by HIPAA.

How do I revoke a HIPAA authorization? ›

The revocation must be in writing. An oral discussion between the subject and member of the research team does not revoke a HIPAA authorization. If the intent of the subject is to revoke, the principle investigator must provide a revocation form to the subject or request the subject's revocation in writing.

When can you override HIPAA? ›

State laws can also override HIPAA on the non-disclosure of psychotherapy notes. Further exceptions exist in the Armed Forces and when an overseas foreign national beneficiary receives treatment provided by the DoD, a federal agency, or an organization working on behalf of either.

What is opt out in healthcare? ›

Opting in is the positive action taken to subscribe or enroll in health insurance whereas opting out requires that the employee automatically is signed up for health insurance, but they need to be able to unenroll just as easily.

Can patients opt out of electronic health records? ›

Opting out prevents your personal health information from being shared on the health information exchanges, with two exceptions: The opt-out right does not apply to when the disclosure is made to public health authorities and is permitted by both HIPAA and applicable CA law.

How do I opt out of health information exchange on Reddit? ›

If you're a patient, you'll need to get in touch with the health system's HIM department (for each system, since they're each in charge of their own data) and let them know you want to limit Care Everywhere sharing.

How can I protect my medical records? ›

Medical Records and PHI should be stored out of sight of unauthorized individuals, and should be locked in a cabinet, room or building when not supervised or in use. Provide physical access control for offices/labs/classrooms through the following: Locked file cabinets, desks, closets or offices. Mechanical Keys.

When can a healthcare provider legally share patient information? ›

Where a patient is not present or is incapacitated, a health care provider may share the patient's information with family, friends, or others involved in the patient's care or payment for care, as long as the health care provider determines, based on professional judgment, that doing so is in the best interests of the ...

Can you hide your prescription history? ›

A lot of hospitals and doctor's offices remove your name from your prescription history before sharing it with marketing or drug companies. If you don't want this to happen, ask your doctor to opt-out of having your information used this way. And remember to keep your pill bottles and receipts private.

Is an individual's healthcare information protected from being shared? ›

Final answer: Healthcare information is safeguarded against disclosure by legal measures like HIPAA and the acknowledgment of privacy rights.

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